Three myths slow cancer research, fail patients, STAT, May 2021.
Patients who consent to participate in clinical trials are informed that their data will be used for both primary and secondary research purposes. When reassured that data will be anonymized, the overwhelming majority want the value of their data to be maximized through reuse. Project Data Sphere™ operates an open access data platform where de-identified patient-level oncology data is shared. Reuse of the data has yielded more than 100 peer-reviewed publications that have impacted the direction of research and patient care in oncology.
Patients who consent to participate in clinical trials are informed that their data will be used for both primary and secondary research purposes. When reassured that data will be anonymized, the overwhelming majority want the value of their data to be maximized through reuse. Project Data Sphere™ operates an open access data platform where de-identified patient-level oncology data is shared. Reuse of the data has yielded more than 100 peer-reviewed publications that have impacted the direction of research and patient care in oncology.
